We were pleased to see so many comments about the community on the recent thread about the Leader Board. We are always wanting to learn more about how we can develop the community and so have locked the previous thread so that all comments and suggestions about general improvements to the community can now be placed here on this thread.
Please comment here on any ideas, improvements or feedback you have about the Online Community.
Please note that although we take on board all your ideas, we may not be able to implement all of them.
As always, please be kind and respectful when commenting to each other.
To help me (and, hopefully, others) decide whether to subscribe (or continue to subscribe) to a thread I would like to see two new features. The first is an indicator, set by the thread's creator, to show whether off-topic posts are welcome. The default should be that postings are to be on topic. Secondly, a list of a thread's contributors. These features would also have the benefit of reducing the number of unnecessary e-mails in an inbox and allow people more time to actually participate in the community.
caretwo said:The first is an indicator, set by the thread's creator, to show whether off-topic posts are welcome.
What are you saying sorry for Ellie?
Caretwo. It seems to me that there is more than one reason people join this forum and although we do have things in common our characters will be varied. You have spoken about the threads keeping on topic several times. So I realise this is something which is important to you. I also accept that on some topics there is a need for seriousness and to keep on topic especially if looking for information or counsel and in those instances it would be a good idea to select keep on topic. However in most conversations it is unnatural to stay on topic. And how do you decide what is relevant to that topic or not? I am not in favour of the default to being stay on topic but yes to being able to select to stay on topic if the person starting the thread wishes it. Conversations ebb and flow from a topic. It is the free flowing relaxed nature of this forum which attracts me and makes me feel at ease ( which I do not have anywhere else). I do not feel comfortable being confined to a topic or thread because it just feels like another way someone else is imposing what they think my behaviour should be. I understand your desire to have less emails popping up but you could be in control of that by choosing not to receive them but looking at your convenience if you wished to.
I am not disagreeing with you to be awkward or to upset you but I did want to point out that I have trouble staying focused on a set subject and doesn't feel like the natural flow of a conversation and this makes me uncomfortable. I don't like being boxed in. I'm sure there must be a way to give you the structure you need and the informality that I need but as to how that would be achieved is a conundrum.
I suspect this stems from my other ND ( random, blurting, impulsive side) but I don't know so. I am trying hard to answer carefully so I do hope you won't be offended by my alternative view.
I do think a list of the threads contributors is a good idea.
Maybe we need a dedicated free for all general chitchat area where we can meet and greet and say goodnight for the day with those we connect with and those not private messaging.
Spotty Tortoise said:
I want to be invisible, am I just paranoid?
I want to be invisible, am I just paranoid?
On the other websites I know of there is an option for the 'invisibility' you want, and even if you are paranoid ~ your concern on this subject matter is without doubt very appropriate and befitting.
Thank you and Caretwo, I don't think I am paranoid, just very uncomfortable being in any kind of spotlight at the moment and doubt that I'm alone there.
Hi spotty sorry if my suggestion caused you some upset? As missy said you can uncheck tracking! So if anyone wished not to be seen as online then I am sure this could be still an option. So an who's online and default not to show it, it would suit most but also last nite I had been very busy all day and when I came on here to catch up it just seemed like I was on my own,
I then went through all the new threads and still no one about,suddenly names I knew replied to various posts, I know it sounds silly but if I knew someone I knew was online I might comment on a non specific post to have a natter and catch up. It did make me feel lonely but that's just my crazy way of thinking which I can't change,it feels nice knowing familiar names are about.
Just say I'm sat here late at night(quite often as cannot sleep) I have no useful knowledge for serious posts,so I just sit here waiting for a new posting. Maybe elephant in the room was also awake stressing over something? We could miss each other.or we could go to a non specific post and have a chat.
Hey ...always here and stressing.....waiting for someone to turn the light off in my room! You ok?
Does 'The Day-In and Day-Out Off-Topic 101 Thread' seem like a viable heading for those experiencing and wishing to communicate about more divergent and less focused states of mind, perhaps?
Sounds ok to me.. not sure if we'd manage not going off topic on other threads but if we did we could be nudged over to 101.
The anti social, social hemispherium... .
Find a way to find the ones we gel with .. gravitate or magnetic force field doesn't really matter where. I'm not good at being tidy.
Crazy lady....."MissFits, best fits!"
Well 'The Day In and Day Out 101 Chat Thread' now exists, so if anyone feels inclined it is there to be used accordingly.
Please would it be possible to post some easy to see links for people who are in desperation on this forum?
I ask as if there is such a facility on this website I haven't seen any.
It is so heartbreaking to see so many desperate people at there wits end coming onto the forum for help. We all do whatever we can but unless we have gone through the problem ourselves personally then we can only sympathise.
I do understand why they would want to ask members as we are the ones who may know how to get help when nothing else has worked. If there are services out there then linking them in some way to this forum would work as this seems to be there last hope.
maybe they have tried all the info or maybe just cannot find it?
certain members on here are practically running a help service! Long may it continue and I feel deeply grateful that they find answers to the best of their ability.
like I say I don't want to stop it from happening,I just want it to be really easy for anyone coming on the forum to get professional help.
Just to finish! Thank you from my heart to everyone who tries to help these very desperate people.we owe you so much.️
Bless you Warrior, I imagine you are thinking of Misfit and Julie among others, it is heart breaking, but I know not what to say, platitudes won't help, Misfit has a practical streak that is deserving of recognition. ()
Thank you spotty
I had a look at the main page and I couldn't see anything that might point people in the right place.
Like I said I want people to come here for answers but sometimes I feel without immediate professional help the unthinkable may happen. I do try to answer anyone who starts a first post that doesn't get an answer,sometimes the post has had thirty odd views! But no reply. Not that we should have an answer as we are all unique and some are struggling themselves. To quote"if you have met one person with autism?you have met just one person with autism".
I am rubbish at posting links or even finding relevant info so feel helpless to help.
These are our people and are being so let down by the system.
Surely the admin are allowed to post links that may be of some use?
Samaritans.etc.I just hope I don't require help as I get older.
http://www.autism.org.uk/about/health/mental-health.aspx This is the page on the nas website but I agree not that easy to find especially when you are distressed. I have called them a few times just to talk when things were bad and they were really kind. I think there is a stigma about calling them but you don't have to be suicidal to phone. Some people are so distressed they come searching but we don't have the answers or experience of professional enough to help but can't just leave them sitting at the end of their tether feeling no one is out there. A feeling we know too well.
Perhaps new members could be sent a welcome email, with basic information and links, when they sign up to the forum?
That strikes me as a good idea.
I know I go on but!
The systems we should expect to help are not working,we accept that,so as this is a fact then anything that can direct people to the sites or organisations that are still running must be a good thing.
I also accept that the national autistic society isn't responsible for dealing with every problem regardless of it's severity.it is a charity and does amazing things for us.
There are many helpful organisations as misfit posted a link to,I not being very IT savvy couldn't find them last nite! Plenty of"this is what we do" and" resources for teachers etc" that is the aim of this website to promote awareness and understanding of ASD/autism/Asperger etc.
You can probably tell I feel very emotional about these folks,it effects me so very much,I feel useless,I have been an observer of others all my life but I now have a voice via this virtual world.
thanks recombinantsocks,good suggestion.
Good idea Recombinantsocks
Are you ok LW.
i agree that there are many member states keeping this virtual helpline going....and it isn't lovely that they help to give such wisdom, useful knowledge and kind words. This must be emotionally draining at times and others pain can be hard to to bear.
it can often touch a nerve that someone is also suffering and their lack of support seem so increasingly the norm. It can make the hole we're sat in feel that much deeper.