Mum to my recently diagnosed son

Hello everyone, 

I am 39 and have a gorgeous 3 year old boy who got his diagnoses two weeks ago for ASD. He is very sensory and can seek and get over stimulated at the same time. He is none verbal and has a special interest in Winnie the Pooh. I am learning with him on this journey and really just want to put myself out there in the hope that there maybe others near who would like to connect with me. I don't really know anyone in the area I live. I moved to be near my late husbands family. Doing this alone and having a child who struggles to shut down at night, has been at times overwhelming as I fight to stay awake with him. But I love everything about my boy. If I changed him he wouldn't be the boy he is. But I do want to help support him to grow and develop to the best of his abilities. I feel I need help to do that. So here I am saying hi and hoping someone may say hi back 

Parents
  • Hi penny jane thank you for taking the step to come here and seek out plans for your lovely sons future,I think he is a very lucky little chap having an understanding mum like you.

    There is a lot of information on here to read through,I am male and 55 and only recently decided I have been autistic all my life,Autsm wasn't really recognised back then,there is a lot of help and support for young ones now, it can be a postcode lottery I am afraid, 

    Anyway someone will appear with links and sound advice to help you.

    Look after yourself and your son,Winnie the pooh is a fantastic place to be in,

  • Hello Loneworrior 

    Thank you for your kind words and I am sorry it has taken 55 years for you to discover you could have autism. I have read about very late diagnoses and hope you can get some support finally. Communities like this are invaluable for both those with autism and anyone supporting a person with autism. I am so pleased my Paediatrician told me about this one. Yes anything Winnie related he loves. He watches documentaries and book reviews a lot at the minute and he currently likes Winnie in German and Spanish. He has many many books on Winnie. For me he is an inspiration and I hope as the years go on I do right by him. 

    Thanks so much for saying hi 

Reply
  • Hello Loneworrior 

    Thank you for your kind words and I am sorry it has taken 55 years for you to discover you could have autism. I have read about very late diagnoses and hope you can get some support finally. Communities like this are invaluable for both those with autism and anyone supporting a person with autism. I am so pleased my Paediatrician told me about this one. Yes anything Winnie related he loves. He watches documentaries and book reviews a lot at the minute and he currently likes Winnie in German and Spanish. He has many many books on Winnie. For me he is an inspiration and I hope as the years go on I do right by him. 

    Thanks so much for saying hi 

Children
  • Thank you again for your kind and supportive words. I totally agree with you. Autism is not an illness to cure. It simply means someone's brain works a different way. My mum put it in an interesting way. She said it's like Mine and her brains work on windows platform and my sons works on MAC. He isn't poorly at all. And you can't take the autism out of him without removing the person he is. We just need to find away to work together. Help each other understand how we each view the world. For him it will always be a bit different to how I see it. I will always support him and help him find his best ways to cope with things he may struggle with. I am sure I will in turn learn a lot from my son. He is a very kind, loving boy. It is always lovely to hear that others have gone on to have families of their own. And now you are a grandparent. What a beautiful thing for anyone. All the best for you and your family 

  • Thanks penny Jane,One thing I find rediculouse is the misconception of people with autism have no empathy! You will find that we are extremely caring and fragile individuals.

    When I say nice things I actually mean them,Being 54 and realising I am autistic was stressful,anyway enough about me! Your son having a fascination for pooh in different languages is amazing,If it helps him then great.

    I have to mention me again as one point I want to mention is about being young, I wrote a very long post about it,I only have nine specific memories of infant school and none of them happy ones.

    I don't know if I were non verbal or non interactive back then but it would make sense,I can remember quite a lot more when attending middle school, still researching all this as I would like to know in that it may help others for me to explain life as a growing autistic child.I am suggesting I kind of woke up or became aware at a certain age? No proof but possible.there is no cure for autism as it isn't a disease.

     So I am suggesting and please be aware this is only a thought not a science. Your son may well be happy in his own world but the usual autistic traits of little communication and interaction aren't things to worry about,if he appears happy then he really will be. I grew up to be me,holding down a job,getting married and having two beautiful now grown up daughters,I am recently a grandad,So with support and understanding your son can achieve anything, we are just a different kind of normal.

    take care and yes I do go on and on.Heres a virtual hug for you and your boy ().