Lost

Hi, I was diagnosed with autism 2 weeks ago, I’d been on the waiting list 18 months. I also have significant mental health problems. I thought the autism diagnosis would help me in understanding why I don’t understand life, but all I feel is lost and confused. I don’t know who I am anymore.

i also have a 17 year old son with autism, he was diagnosed when he was 14.

Parents
  • Hi NAS67318,

    Sorry to hear you're having a difficult time following your diagnosis. There are some resources here on the site for people in your position - recently having been diagnosed as an adult - that might be of some help to you. If you go to our After Diagnosis page - https://www.autism.org.uk/about/diagnosis/adults/after.aspx - there is information and advice on potential difficulties that may arise, social and community support, benefits, advice on employment as someone with ASD and more.  There is a link at the bottom of the page to our Autism Helpline as well if you would like to speak to someone directly.

    You might also be interested in the Autism Services Directory - https://www.autism.org.uk/directory.aspx - which you can search by location for different types of autism related services and support groups, if you think that's something that might help.

    Hope this is of some use to you,
    Best wishes,
    Ross - mod

Reply
  • Hi NAS67318,

    Sorry to hear you're having a difficult time following your diagnosis. There are some resources here on the site for people in your position - recently having been diagnosed as an adult - that might be of some help to you. If you go to our After Diagnosis page - https://www.autism.org.uk/about/diagnosis/adults/after.aspx - there is information and advice on potential difficulties that may arise, social and community support, benefits, advice on employment as someone with ASD and more.  There is a link at the bottom of the page to our Autism Helpline as well if you would like to speak to someone directly.

    You might also be interested in the Autism Services Directory - https://www.autism.org.uk/directory.aspx - which you can search by location for different types of autism related services and support groups, if you think that's something that might help.

    Hope this is of some use to you,
    Best wishes,
    Ross - mod

Children
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