I hope I don’t offend anyone I apologise now if I do.
My partners got 3 children with his ex partner and the 2 eldest have recently been diagnosed with autism. He’s struggling to cope and I have a 17 month old son with him who doesn’t hold his own bottle or talk apart from row row and it might be normal but I’m worried that my son might have autism to I read stuff online and it scares me feel like I can’t talk to anyone.
His children in order of gender are:
what’s the likelyhood of our son having autism and where do I go from here?
thanks in advance
Pip score is purely for benefits and has no medical basis as it is not assessed by doctors, please don't confuse the two. Also fragile x test has nothing to do with autism, it merely has some similar attributes that could mean misdiagnosis hence blood test for fragile x syndrome. Your first description of your sons "feeding" you described as force feeding. Most people would think the worst at that description. Although if he was that intolerant I would ask why you didn't have assessment or him be given a feeding tube.
Lastly handicapped is not really an acceptable phrase these days I know it used to be
IN RELATION TO YOUR STATEMENT A PIP SCORE HAS NO MEDICAL BASIS.
While the PIP investigation decides on a persons level of disability with a score depending on the disabled persons ability in completing tasks ie a score as to how that person is disabled with 12 points being the maximum needed for maximum disability benefit, In order to get a Blue badge the disabled persons ability in regards to mobility is assessed. with again a further score of 12 points needed in order to get maximum mobility allowance and with it a Blue Badge to enable the disabled person to park in designated spaces. To get mobility allowance the disability has to be a physical disability. This Benefit has to be assessed by a medically qualified person.
In fact I requested in the case of my son, he be examined by a SPECIALIST DOCTOR of neurology, because his original diagnosis of autism at the age of 3.5 years was made by Dr Rosenbloom a renowned pediatric neurologist at the ALDERHAY HOSPITAL with a team of other specialists. In the time available they could not comply, but had another qualified person that I believed reasonable at the time (now buried in a full box file).
With this original diagnosis of autism I applied for an Orange Badge in relation to parking and was rejected, Then followed Many years of going to Tribunals, getting, rejected, appeals to a Court, More Tribunals In the end I finally got it to a MEDICAL APPEAL TRIBUNAL where he was examined by SPECIALIST DOCTORS and where he was running round the walls almost like Billy Wizz. Where he was awarded maximum Mobility Benefit, initially for one year, it has been continuous since then. I was able to show his disability was Physical and not Mental, as had been presumed to deny him and others a benefit.
The fact that he plays to some degree with his brothers is a good sign, remember they must be enormous to him. I don't remember playing with my younger brother when young, except in passing.
Flicking fingers in front of his eyes to get visual stimulation, but all children do it, but not to the same degree if it noticeably often.
Shattering Clay plant pots on a path in the garden to get noise and visual stimulus as the parts fly apart. He is known to do the same with egg from the Fridge on the floor. (Not so often now) and crockery a stress relief to a climax of stressful behavior, then calm.
Insisting on getting dressed in a certain order, sometimes wanting inappropriate clothing like wearing two pairs of pants. and outdoor clothes inside the home.
As a child liking thing coming at his face like toy trains on a track, with his head on the track, visual stimulation..
Spinning round and round to get giddy and falling down, with a danger of hitting his head.
Liking the outside breeze on his bare skin, obviously when it's sunny.
liking perhaps colder than usual splashes in the bath, when older taking cold showers that seem's odd behavior.
Having to wear a nappy when he is older.
Liking repetition, repetition, repetition etc.of something he can control, such as you reading a story. maybe sounds, voice or music on a loop when older.
Most Children will do unusual things like all the above, That is why Doctors and professionals will not commit themselves until a child is about 3.5 years
But letting your doctor know your worries may get you help with all of the burden you appear to be undertaking.
Lots of autistic people have blue badges. So do lots of other people.
I never said that you didn't get supporting evidence from doctors for pip (common sense) merely that pip itself is not a "medical assessment" it is a "benefits assessment " and what you described is MOST people's struggle to prove what doctors (medical professional)say about your (or in your case your sons) conditions and how they affect you to a pip assessor (specialist benefits advisor) who generally reports differently as they are not doctors. Thus meaning a pip score is not a medical gauge of how disabled you are.
New blue badge rules coming in
Not that anyone even mentioned blue badges but still.
It's not a competition, you used your sons pip score to try and validate your point over someone else's, who questioned you due to your own wording and pointed out that practice is different now.
Could I also point out that although lack of trying to feed as a baby has been documented as possible indication of severe learning difficulties (what you called handicapped) this is not widely used as a gauge early feeding problems (within first week) are more likely caused by blood sugars, infection, cleft palate and many others.