Hi I'm new to the forum and looking for some guidance, my son is 12, I have known for a while he is not like many other children particularly in social situations. He is great at school and has no issues conforming to very structured routines. A few months ago I realised it is very likely he has aspergers, he agrees with this and has asked us to request an assessment. In primary school staff describe him as 'quirky' and failed to realise why he was isolating himself in the playground for many years. I finally plucked up the courage to contact school and spoke to the newly appointed SENCO, I discussed my concerns and requested she refer him to CAMHS, I was very frustrated by her response as she replied 'we don't want to label him' followed by 'I halve many friends with aspergers who have never had a diagnosis. I have since spent the entire weekend with the same questions whirling around my head and feel totally isolated'. My husband is always supportive however is even more unsure as he does not want him to be bullied, labelled or for this to have an impact in later life, I feel unable to talk to him, I am finding this incredibly difficult as I am so very unsure if my son would gain anything from a diagnosis other than confirmaion. As he gets older he is adapting more and more, we still live on egg shells with his behaviour outburst although they are reducing as we are adapting to his needs and he appears settled in school. Does anyone have any advice around best way forward ? Has anyone got any older children who it has led to bullying?
I am one of the many adults on this forum who got their diagnosis in later Life after years of confusion and not “getting it right”. You do have some advantage having recognised this now. There are benefits to having a diagnosis going through the education system and at work because accommodations can be made to help. Without a diagnosis this would be more difficult. If your son is would like an assessment then I don’t see this as negative for him. You can approach your Gp and discuss it with them, it doesn’t have to be through school if you are coming against opposition. You may live in an area where there are more autistic support groups and activities which your son could participate in meeting like minded young people. I hope you will look around to see what facilities are Available ( there is a directory on the main website) and also speak to your Gp to try to get a more balanced view other than just through school.
Thankyou Claire it is good to know I'm not alone, I feel more isolated as me and my husband have always worked as a team. I feel I am on my own fighting my sons corner.
Hi misfit61 if you had the chance would you have liked a diagnosis earlier in life? I have considered the gp but I have had a few issues with my current one so will be looking to change before speaking to them, unfortunately I don't feel able to discuss at the moment.
That must be hard. My husband was against it for quite some time but he eventually realised the stress it was putting everyone under especially my daughter herself. We had a 2 red flag moments where it was just obvious at school and one at the airport. This is when I think he really saw the anxiety she was going through and the effect it was having on us as a family. I also had tried maby tecniques none with any effect and was disaplining her not knowing if she had control of her behaviour whixh made me feel so quilty. It was these moments really when he started considering and agreeing with the tests. Tbh he will still say it now it's such a lengthy process it's hard to see the end I suppose.
In addition to the community's response to your questions, if you feel you are not getting the right support from school, you could contact our Education Rights Service. They're available to offer you confidential information and advice, help you explore your options so that you can make informal decisions about your child's school education, and explain education law and your rights.
To use our Education Rights Service, you'll need leave a message on our answering service and we will call you back, which you can do on by telephone (0808 800 4102 and press 1 for our Education Advice Line), by emailing your details to: firstname.lastname@example.org or by filling in our online enquiry form: http://bit.ly/1P3j0Xr.
Please include your name, number, brief details of why you are contacting us and the best times to call you back. We aim to reply within 10 working days.
I hope you find this helpful.
Heather - Mod