Hi I'm new to the forum and looking for some guidance, my son is 12, I have known for a while he is not like many other children particularly in social situations. He is great at school and has no issues conforming to very structured routines. A few months ago I realised it is very likely he has aspergers, he agrees with this and has asked us to request an assessment. In primary school staff describe him as 'quirky' and failed to realise why he was isolating himself in the playground for many years. I finally plucked up the courage to contact school and spoke to the newly appointed SENCO, I discussed my concerns and requested she refer him to CAMHS, I was very frustrated by her response as she replied 'we don't want to label him' followed by 'I halve many friends with aspergers who have never had a diagnosis. I have since spent the entire weekend with the same questions whirling around my head and feel totally isolated'. My husband is always supportive however is even more unsure as he does not want him to be bullied, labelled or for this to have an impact in later life, I feel unable to talk to him, I am finding this incredibly difficult as I am so very unsure if my son would gain anything from a diagnosis other than confirmaion. As he gets older he is adapting more and more, we still live on egg shells with his behaviour outburst although they are reducing as we are adapting to his needs and he appears settled in school. Does anyone have any advice around best way forward ? Has anyone got any older children who it has led to bullying?
In addition to the community's response to your questions, if you feel you are not getting the right support from school, you could contact our Education Rights Service. They're available to offer you confidential information and advice, help you explore your options so that you can make informal decisions about your child's school education, and explain education law and your rights.
To use our Education Rights Service, you'll need leave a message on our answering service and we will call you back, which you can do on by telephone (0808 800 4102 and press 1 for our Education Advice Line), by emailing your details to: firstname.lastname@example.org or by filling in our online enquiry form: http://bit.ly/1P3j0Xr.
Please include your name, number, brief details of why you are contacting us and the best times to call you back. We aim to reply within 10 working days.
I hope you find this helpful.
Heather - Mod