I have a a 12 year old son who has autism and has been diagnosed since he was 6.
He has always been fussy with his food, but just recently we caught him making himself sick on an number of occasions and we know of other times he has been sick many other occasion but we dont know if he has done that himself. He is also very underweight and all his bones are visible through his skin.
We had him back to camhs where we have been told it too early to diagnose anorexia . Also they said to give him vegetable fats in abundance such as nuts seeds and fish !! not gonna happen !
Just after some advice really or similar experiences
Thanks claire x
Hi Guy, I don’t think I’m going to be much help here, it’s just my experience of food and eating. I’m 50 years old with autism and have had difficulties with eating all my life. I’m ok if I follow a strict program and I get into a habit. What I find interesting is that today, I’m feeling so happy and I HATE food. I want nothing to do with any of it. It’s like it drags my life down. When I get on a role, I can eat it and even really enjoy it but when I’m feeling so good, like today, the thought of eating or even drinking is such a big distraction that I don’t want anything to do with it. It’s like it has nothing to do with me, why would I want to eat it? It drags my soul down and makes me feel sick and sometimes I do vomit. I would regularly vomit as a child after eating if they managed to get any food down me. I was vomiting a couple of days ago. I think that because I don’t identify with my body, in the way most people do, I don’t have that natural connection towards food. I’m a nutritionist and Ayurvedic practitioner so I know all about food and healthy eating etc but when it comes to me and food, we don’t get along.
I’m going to ease myself into eating a mostly raw food diet. I don’t over eat on raw food and it doesn’t make my stomach feel heavy or sap my energy. It doesn’t mess with my emotions etc and after 50 years of trying different ways of eating etc, I think that this may be my answer. I feel much better on a wholefood plant based diet but I think I need to take it to the next stage. I don’t particularly want to but I know I’ve got to sort this damn eating issue out and this seems like a solution that could work, at least one that’s worth trying.
p.s. I’ve also had a life long obsession with exercise and a fascination with toileting needs. I was first taken to the doctors when I was just a little kid, with my eating problems. The doctor simply said I didn’t chew my food so needed to chew it. I thought, of course I’m not chewing my food, I don’t want any of that stuff in my mouth so I’m not going to chew it. I have always eaten things of a certain colour, shape, smell, texture etc but this was more about trying to do damage limitation, to have as much control as possible over this stuff (food) that has to go in my mouth. After 50 years, despite people telling me I have an eating disorder (I have never in my life considered this) I have finally realised, that it certainly ‘looks’ like an eating disorder. That shocked me. The realisation came only a few days ago when I was yet again, throwing up after eating a really nice dinner. I would never go down the eating disorder route. I will not have my eating habits pathologised, but now I’ve got a greater awareness of it, I can deal with it.
For me, the top and bottom of it is that I don’t identify with my body as if it was a part of me, beyond let’s say, an earth suit, that I wear while I’m here on planet earth. ‘I’ don’t need food but I understand and accept that my body might, so I’m willing to try. I’ll try a raw food diet and if just doesn’t work, I think I’ll become a breatharian! Lol! They don’t eat (or drink I don’t think). There was one in Bali the year before last when I was there but I never got to meet her.
Excercise and monitoring my bowel habits etc are good for me, the exercise keeps my mind fit and I can tell from my bowel habits how healthy my diet is and if I need to make adjustments. I was once told by a super excited consultant that I had the cleanest bowels he had ever seen, and he’s seen quite a few over the years, he was over the moon by it! Lol! So at least I know I’ve got clean bowels! lol!
Just to add, I’ve never had body image problems. I don’t care what shape it is, I wouldn’t of ever thought about that if my sister hadn’t brought body shape to my attention. To me, it’s a body, if it does it’s job, good, if not, fix it. I don’t care how my eyes and nose etc are arranged on my face, it’s a face, we all have one and we’re all beautiful. And this started when I was a little kid, 18 months old in fact, maybe even before, so it’s definitely not a problem with body image for me. It’s the whole thing about putting stuff in my body, like I’m a dustbin or something. I don’t like how food feels in my stomach, it can make my heart race, it can give me anxiety, it can make me angry, or tired, or snappy, it can do so many things to me and I don’t like it. There’s always the fear of what will happen when it hits the stomach. I don’t seem to get any strong reaction when I eat raw food so although it’s not the most exciting food in the world, it’s simple, quick to prepare, it’s nutritious and doesn’t harm me or send me weird in some way. It’s taken me a long time to work this out.
Hi Ross, thanks for pointing this out - so much helpful info on the website!
thanks for taking the time to reply, especially in such great detail. As our son doesn't tell us much about things, this is very helpful to have a little insight into some of the possible processes going on in his wonderful mind.
All the very best to you & your Earth suit!
And thanks to you for bringing this up. I’m going to check out the links that Ross gave ~ I would love to be free from this eating disorder. I’m going to try raw food only but I’m going to check ohe info that’s here as well, I feel sure I’m going to get some helpful tips. Super exciting Best of luck to you and your boy and the earth suit’s getting more comfortable by the day!