Adult private diagnosis without GP referral?

Hi,

I'm a 28-year-old woman and I strongly believe I have high-functioning Asperger's - I was just wondering if anyone here had successfully obtained a private diagnosis of ASD without having to be referred by a GP? I'm in the North East but there doesn't seem to be anywhere offering this around here.

My reason for seeking a diagnosis is just to put the problems that I've had all my life into context - I'm not seeking any NHS help or any benefits.

I very much doubt I would get a referral from my GP (or any other doctor) as I'm sure it seems that outwardly I am 'coping' - I have a partner and a full-time job, and a range of (fake) social skills that I have been able to mimic from others, but this is all very much an act which is exhausting to perform every day. 

I also fully accept that my Aspergers is not causing me as many problems as it does for others, and this is another reason that I would feel uncomfortable taking up a space on an NHS diagnosis waiting list.

Many thanks in advance for your help :)

(PS - Yes I know I'm extremely lucky to be able to afford a private diagnosis - I'm only able to afford it because I was left a small amount of money when my alcoholic mother (who I believe also had AS) died last year. I'm certainly not rich by any means)

  • Couldn’t there have been updates and changes go processes and procedures since? I wasn’t aware we couldn’t comment on older threads 

  • Loads of replies already on this.

    why are out asking again and bringing this old discussion back on to the forum?

  • I also feel the same so interested in any direction or advice 

  • Hi Miamoo

    check out Odd Girl Out (Laura James), Nerdy, Shy, and Socially Inappropriate (Cynthia Kim)...

    also the Musings of an Aspie site is good...below is a long list of compiled profile traits particularly focused on women by Tania Marshall. I found the latter very interesting as the two books tend to focus on the authors personal experience but do include some good strategies. You can read sample content of both online.

    https://taniaannmarshall.wordpress.com/2013/03/26/moving-towards-a-female-profile-the-unique-characteristics-abilities-and-talents-of-asperwomen-adult-women-with-asperger-syndrome/

    hope you find them useful.  Ellie 

  • She is the person I would be referred to if I asked my GP for a NHS referral, so that's good, she asked the name of my GP practice, to check for me.

  • Thanks Elephant, the lady I spoke to at Axia said that I could go to them via the NHS as they are the correct route or something, but she said it would take a lot longer, the GP has to apply for funding etc, my GP is rubbish, its a huge surgery with 20 different locum type doctors who swap and change so you never get to see the same GP twice, I find going to the GP so stressful, I keep meaning to switch to a smaller GP practice in town, but the GP practice I'm at now I have been all my life, and I never get round to it. I would rather just pay and find out more quickly, I am a lady :) I don't know if I am particularly clued up in the differences between male and female ASD, is there anything in particular you would recommend me reading?

  • No need I think! You will find her quite serious in some ways, but I eventually enjoyed that and we had a laugh or two along the way. She does a lot of NHS referrals in the region, but I am too long abroad to be allowed NHS attention. I imagine the waiting list might be a bit longer for NHS.

  • It is just a shame that  you have to pay to go through this  privately...are you up to speed re. The research on how ASD presents itself in women (assuming here that you are a lady!) :)

  • Thanks I'll have a really good read up before hand. The lady I spoke to was really nice and did reassure me. I'll be glad when I know one way or another.

  • Well done for making the phone call and arranging the meeting,  there has been some good advice posted on the site about how you can best prepare yourself for the appointment which I hope with reduce the fear factor. 

  • I've just made an appointment with Axia-asd for November which is the first appointment they have available. Feeling scared now!

  • Hi, my SD16 ended up on the adult pathway for a private diagnosis in NZ. She was seen by a single clinical psychologist who administered AAA, her Dad completed a developmental questionnaire to help identify certain aspects of behaviour not always clear in the  AAA (but not essential for a diagnosis if there is no one able to do it). It was 3 hours plus 3 hours of interpretation and write up/ discussion about results. In my experience it's about the same in dollars as pounds so we paid $650. 

    My SO was assessed by his public health psychologist after SD16 got her diagnosis. He didn't diagnose with ASD but rather with cPTSD from a combination of family of origin issues and abuse by the girls' mother...he also was screened wit AAA and it was completed in 4 hours as the psychologist didn't have to write a detailed report. 

  • The adult neurological assessment is more based on discussion and observation it seems. Less testing, because most adults have already adapted quite heavily to their earlier challenges.

  • Yes it is very interesting to see the variation in prices, I guess its for kids who will need support in school etc you need to go for the full multi disciplinary assessment,  and you can see why that would be very expensive as you have 2 or 3 professionals involved.

  • I was quoted £850 for private assessment in Canterbury, Kent, I'm not going ahead with that as I've now been referred to the Maudsley and just have to wait and wait... and wait some more.  Not much use to you but it is interesting to see the variation in prices.  I imagine there is a similar but not necessarily correlating variation in service provided.

  • Hi Dunk

    i am happy (90%) with just self diagnosis....but I believe that a piece of paper might help others take on board who I am...some people seem to need a medical stamp rather than believe the person themselves...

    i believe that I know myself well enough, I have carried out lots of research and would take myself to be a well educated academic 

    it is a shame that there seems to be a post code as well as family support lottery out there..

  • I'll try and send you a private message on that. A bit more than you mentioned, but no hidden extras.

  • How much was the diagnosis from axia if you don't mind me asking?

  • I'm also interested in this topic, am looking for someone who diagnoses adults privately, I've contacted many people already, I've only had a couple of replies so far, one from spectrum north west and they are close to 2k, £590 is the cheapest but its too far away in Eastbourne (I'm in the North West).  As I only want to be diagnosed for my own peace of mind, and just to know one way or another it doesn't have to be the full multi-disciplinary assessment

    I cant afford more than £500 for assessment.

    If anyone gets any prices could they post and I will do the same.

  • @lemondifficult I would be really interested in the outcome here. I'm also in the north east and a 29 year old female. I have been told the NHS waiting list is up to 2 years!