Hi, I am currently seeking a late diagnosis and am in my 40s.
I get the feeling that they have seen it all before. And the care you receive is not personalised. Just a kinda this is what I do when someone says x.
I asked for an Adult social assessment because I am not diagnosed and need some help. And I was told that because I do not have an autism diagnosis they will not be sending a qualified person from the autistic team. I nearly bit my tongue in half. I'm glad I had it in an email.
According to care law, they are supposed to use someone qualified to assess you. I decided to go for the test.
What happened was not a care assessment but a community care plan. That looked at me being able to use my phone to make reminders. I am fuming. It was like talking to a brick wall. I had my support worker and he was stressed. I was taking too long to talk with my stutter.
Is this a normal frustration
Or some kind of autistic thing to always have people follow rules?
What are peoples take on this?
Did you get a social care assessment or something else?
Any advice welcome.
I'm neurotypical ( do have abi so not entirely normal!) but I get seriously wound up with NHS staff and other professionals, they have guidelines to follow I completely understand that, but when they pass you around and end up making things more difficult it drives me nuts!
Oh, they have rules to follow. and those creepy internal policies.Like having to call 3 times before your problem is escalated. What if you are shy, why the hell would you call three times, let alone once.
Oh I get that one, I suffer from anxiety and hate making phone calls I can do it but I have to really talk myself in to it! And when they pass you between departments so you keep having to explain the same thing over and over it drives me nuts.
This comes under another rule. Quite a big one the Equality act - making reasonable adjustments for expected service users.
They know people have anxiety - they only provide a number when a text service would be better. This is super unlawful.
I can’t get a single person to take me seriously since my diagnoses.
Yes to docs - but no surprise there. Docs are card board cutouts with as much knowledge as a table.
Since im now certified freak - I’ve noticed people who once took me advice now just ignore it. Even in my field of expertise - it’s like my opinion is now obselete.
I'm also seeking a diagnosis later on in life (I'm 32). The first time I went to Doctors took a huge amount of energy. I was diagnosed with depression and sent away with antidepressants which I didn't take. Whilst trying to explain myself the doctor actually talked over me, he did this a lot - something you simply do not do. I eventually realised he wasn't truly listening, I don't think he really cared. I then went back to a different doctor with a list and bombarded him with symptoms, history and what I wanted - I didn't let him get a word in. I got my referral.
Cloud7 said: The first time I went to Doctors took a huge amount of energy. I was diagnosed with depression and sent away with antidepressants which I didn't take.
Apart from my age, this is a very similar experience to mine.
I had been having memory problems far worse than normal, and was off work to stop me snapping at everyone (and a manager had told me she thought I had dementia!) My GP diagnosed anxiety and depression, I had a blood test,was prescribed Vitamin D and antidepressants and put on a CBT course. I am useless at taking medication, after taking the first tablets I forget to take them, and the CBT was only of minimal help. My GP when I told him I thought I might be autistic told met that my local health authority did not have an adult referral pathway and in any case because of my age it obviously hadn't affected me too much! This despite problems I'd had throughout my life. Then he added that the waiting list was in excess of two years anyway.
I decided to go down the private route
I'm sorry to hear this.
The thing about having a high IQ is that you can be resilient and compensate. You compensate for lack of eye contact, social etiquette, and pretty soon you actually look like a normal person. It's exhausting and looks like fatigue or depression. But it is how you cope. So they give pills to rule it out and try something else. this why I feel like a faker. This is my limbo.
I am going to the doctors Friday for antidepressants, and a blood test. Today is a rainy day in England.
If I could go down the private route I would be happy, I guess.
I've compensated and masked it my whole life without knowing how my brain really works just so I could fit in. I did it that well that very few people know the real me. I come across as social and can get on with almost anybody - I do this by mimicking their mannerisms and language. This only fails when I come across somebody who is exactly like me! It's a very awkward sight! This takes it's toll though as you say but I do it to appear normal. It takes as much effort to talk to those I work with as is does to actually do my job, sometimes more. Nobody sees this.