The NAS has created a petition to “Stop the detention of people with autism and learning disabilities in ATU’s”
I have just signed it and urge everyone too as well.
There but for.....
Get family and friends to as well. 80,000 signatures needed to get a debate in Parliament.
Signed. I ended up in a mental health hospital - which was a 2.5 hour drive away - run by the Priory Group. I was told if I didn’t go - by someone I had never met before, 30 seconds after meeting him - I would be sectioned. I was there for nearly a month. Whilst there I witnessed patients being forcibly restrained and given an injection.
Patients were not allowed outside the building unless the psychiatrist gave permission. I didn’t see the psychiatrist for the first 8 days. It was a secure unit and I was only allowed out after finding a member of staff willing to unlock the exit door. They took details of what I was wearing and said if I was longer than the allotted time, they would call the police.
Now I’m afraid to access help because I’m worried I’ll get locked up again.
Graham said:Now I’m afraid to access help because I’m worried I’ll get locked up again.
Knowing your rights is essential in respect of getting appropriately treated or else out elsewhere for more befitting reasons.
Here's a general listing of what's what involving whom and when with being or not being sectioned:
I got put up for section and my psychologist would not sign off on it, so basically I became an out patient at where it was originally intended for me to be sectioned ~ once I was discharged by the psychologist who prevented the section in the first place.
My GP had unwittingly miss prescribed my medication resulting in me having major seizures left, right, front, back, up, down and flip fitting centre everywhere . . . several times a day, and hence the GP and their lot kept pushing for the section as the Ambulance crews and Hospital staff were having major problems with the old hulkian aspergenic strength thing.
Once "I" realised the medication mistake, through "my" researches, everything calmed down once "I" got it sorted out.
I had to get alot of things sorted myself, and it was often surprising (in that here we go again way) that I had to explain correct procedure and legal outcomes to health professionals ~ so many, many, many, many, many, many, many, many times.
I mean bless us all ~ we are all on "L" plates in this life, but when avid new health-workers hit the front-lines, the biological and psychological messes their patients are in messes them up too, yet often they are too overworked and robotically habituated to notice until they themselves burn out, break down, or worse.
Worth considering also, Doctor to patient superiority where the Doctor is knowledgeable and the patient is ignorant ~ is standard procedure. It is important to respect this, most especially considering how ignorant some Doctors, some people and even ourselves really can be.
One extent of Doctors though are well into Patients being experts upon their own conditions, the other extent are not.
Advocacy services are a seriously good idea though ~ so if you find yourself not getting anywhere by asking for 'REASONABLE ADJUSTMENTS' in respect of NHS (or other) SERVICES, as according to the Equality ACT 2010 (in full detail):
(brief and simple):
Then get in contact or have someone get in contact with an Advocacy Service, and they will get your situation addressed appropriately and accordingly.
Here's one perhaps to ponder or maybe even use:
Thank you for the links Deepthought
Sorry to hear of your troubles with the health system. You are right, fore warned is fore armed. The first action I’m going to take is change my GP. When I told my present GP I have proprioceptive hallucinations, he replied, ‘I’ve never heard of that,’ and made no attempt to inform himself.
After a lot of research I decided on Taoist meditation and visualisation techniques. The imagining that I’m moving chi around my body seems to have lessened the hallucinations. I suspect that my synaesthesia points to sensory input and output crossover.
For as long as I can remember I’ve had periods where my fingers and tongue feel around five times the size they actually are. My eyes aren’t deceived but my brain overrides visual input. It used to frighten me as a child, now I’ve gotten used to it. When my brain started to tell me that my limbs were arranged differently to the reality, I kept falling over and mentioned it to the aforementioned GP. The Taoist techniques have slowly improved this. It’s not a quick fix but hopefully will prove more effective than a chemical cosh. I also downloaded a book on advanced Yogacara meditation. Whether this is any different to other Buddhist schools meditation techniques. I don’t know. It’s not a subject I know to any depth.
Once again thanks for the links, I shall familiarise myself with my rights.
Graham said:For as long as I can remember I’ve had periods where my fingers and tongue feel around five times the size they actually are.
During the first 6 years of my life, I could not work out how it was that the cartoon character Popeye the sailor man of Olive and Bluto fame had to eat a tin of spinach ~ in order to get his arms and hands the same size as mine felt all the time.
Then when I was 11 my mother got a family medical manual with every disease and ailment known at the time, and I found all big and eureka session the Cortical homunculus:
In terms though of calling feeling like this a Proprioceptive Hallucination, not quite according to DSM manuals with it being a Body Dismorphic Disorder that is non-delusional, and is listed as a somatoform disorder.
Consider for instance sleeping on both arms and waking up to find them feeling numb and swollen, this is a somatic or physical response to a blood flow restriction caused by bodyweight resulting in cellular oxygen deprivation.
The extra fat finger and tongue sensation is, as you say, a somatic hallucination. Sometimes my limbs (usually my legs) occupy a different space, usually I think they are akimbo, in reality they are not. I thought this sensation of a body part occupying a different space to the reality was a proprioceptive hallucination. I also - luckily very rarely - feel I am moving through the air. This only happens on awakening. Hypnagogic and hypnopompic hallucinations - bright colours and shapes - as I go to sleep and on waking respectively, don’t bother as my synaesthesia has accustomed me to such visual apparitions. (My avatar is a painting of a hypnagogic vision by the artist and synesthete Carol Steen)
I didn’t know about the Cortical homunculus, that’s interesting. I shall see if I can trace the sensation of large fingers through the different neural pathways to the brain.
With Taoism - I find the current mindfulness fad, trite and shallow - my aim is to imagine the chi moving through my body whilst meditating and doing a qigong exercise I learnt some time ago. This obviously takes time and practise in order to undertake all three simultaneously. Whether chi exists or not is immaterial to me, it feels like I do move something around my body. After doing this three times a day for over 3 months, the worst of the hallucinations have abated. Time will tell whether this is just a coincidence or a result of the exercises.
Graham said:The extra fat finger and tongue sensation is, as you say, a somatic hallucination.
Again not quite a somatic hallucination but a sensory disorder involving a delayed presentation of a stimulus, just as for instance Tinnitus is not a hallucination but a bio-feedback resonance.
Graham said: Sometimes my limbs (usually my legs) occupy a different space, usually I think they are akimbo, in reality they are not.
When you are receiving sensory data that your legs are akimbo, they were in reality as such perhaps during the night, or from an earlier period of time or times.
Perhaps see about making a visual recording of your time asleep and seeing if the sensory delay applies to your night's sleeping position or positions.
It may be that these sensory delays are though combinations of body positions from longer periods of time back in your life experience.
Or additionally, if they are more synaesthetic in nature and going really akimbo in the vertical, horizontal and or diagonal sense of rotation (such as I experienced in the vertical sense forwards or backwards more with my legs passing through my torso and head, and my arms also more in the multi-directional sense) you could be going plainal-spatial in terms of adjusting to conscious and experiential awareness of sensing spatially in all directions simultaneously.
Spatial awareness is more usually experienced when we can 'feel' people close or near behind us, or as such or elsewhere looking at us from a distance.
Graham said: I thought this sensation of a body part occupying a different space to the reality was a proprioceptive hallucination.
Well unfortunately you may have done a "Head Cruncher" or "Linguistic Overload" job on your GP, as Neurophysiology and Synaesthesia might not be your GP's specialisations, or interests.
Keep in mind that GPs are more anatomy and physiology really, and psychology (hallucinations) and neurology (proprioception) involves Specialists.
There is also much debate about what are or not the boundaries between hallucinations, misconceptions, and illusions.
In respect of GP friendly terms also ~ Body Dismorphic Disorder that involves misconceptions of body shape and position, is a dead give away as to what it means, as compared to the tricky dichotomy and debatability of Proprioceptive Hallucinations.
The basic thing with GP's is present the symptoms and let them come up with the name ~ such as Doctor so and so at the nearest neurology unit! ;-)
Or if they do give a preliminary diagnosis of a condition, and you are certain it is something else, ask if that condition is like the one you are certain of.
Always though use the spirit of inquiry and be reserved with the certainty. In this way the Doctor (in power or in charge of) Patient relationship is maintained, rather than strained.
Also, try not to be annoyed about your GP not informing himself about your condition, as for the afore stated reasons, and that they really do have insane and insane making workloads. Anything from the most uplifting and inspiring births to the most depressing, distressing and ugly deaths, and vice versa. Day in day out.
To bypass this write a letter informing your GP of what is what symptom wise, and ask if might be what you think it is, and state you would be great full for any suggestions. It will go on your medical record and the appointment notated. Plus your GP is prepared and can feel more in control, bless!
Graham said: I also - luckily very rarely - feel I am moving through the air. This only happens on awakening. Hypnagogic and hypnopompic hallucinations - bright colours and shapes - as I go to sleep and on waking respectively, don’t bother as my synaesthesia has accustomed me to such visual apparitions. (My avatar is a painting of a hypnagogic vision by the artist and synesthete Carol Steen)
According to allopathic corpse based medicine ~ bright colours and shapes etc are hallucinations, but holistic field based medicine ~ quantum psychology and physiology ~ they are referred to as higher sense perceptions, involving higher plains of experience, and people who have them are currently three in every one thousand ~ with Autistic people being in the majority.
A very good introduction to this sort of thing is book called Hands Of Light, by Barbara Ann Brennan, who developed body field stabilisation tech for NASA:
I mean it is about energy healing, but energy flow is energy flow and understanding and comprehending the functions and capacities of our full anatomy and physiology as such ~ does not mean you have to become a healer or anything.
Graham said:I didn’t know about the Cortical homunculus, that’s interesting. I shall see if I can trace the sensation of large fingers through the different neural pathways to the brain.
Have fun! :-)
Graham said:With Taoism - I find the current mindfulness fad, trite and shallow - my aim is to imagine the chi moving through my body whilst meditating and doing a qigong exercise I learnt some time ago.
I am actually quite into the current mindfulness fad as a movement, as being more present minded is a really good thing as most people are fantasising away to the next meal, payday, holiday and missing the presence of themselves and those they might be closer with as such in the present.
It would be so much nicer to hear people saying on their death bed that they were glad to have spent a little time alone here and there ~ rather than deeply regretting having not spent more time with their loved ones.
In that I have been having seizures since I was three, I did not need to imagine Chi, it was more a case of my body-mind relationship being electrocuted by it ~ or actually Chi, lee and key. I always jumble the three up but one is neutral dark 'zero-point' essential energy, one positive dark 'diamagnetic' subtle energy and the other negative light 'electromagnetic' gross energy.
I went the marshal art way about things first to work the energy, starting with Judo, then freestyle kick-boxing and psy-key-doe (cannot work out how to spell it) Ti Chi, and then yoga to retire from externalisation and do the internalisation thing.
Graham said:This obviously takes time and practise in order to undertake all three simultaneously.
Yeah definitely on the time required session, the work of the ages takes ages but we have ages ~ I'm just about 48! :-)
Graham said:Whether chi exists or not is immaterial to me, it feels like I do move something around my body.
Chi is immaterial to everybody!
Sorry ~ could not resist that one. :-)
Yes definitely with feeling movements from within the body, around the body and through the body.
Graham said:After doing this three times a day for over 3 months, the worst of the hallucinations have abated. Time will tell whether this is just a coincidence or a result of the exercises.
Well when I went all Dismorphic back in 97 I had gotten into transcendental meditation, using singing bowls and Tibetan Mongolian chanting, so that got me through, along with learning cyclic energy breathing to ground myself. Being suicidal meant I was excessively becoming a member of the "Airborne Division"!
I had every limb going in every direction around and through my head and torso. The first time it happened I was sort of semi asleep until I had my knees in my chest, my shins in my face and my feet sticking back over my head. Then as time went on my knees were still in my chest but my shins were through my chest and my feet out my back. Then it got really "Somatoform Hypermobility" blur tastic and I got it sorted by a crystal healer type. It was just a one session job for half an hour.
A simple grounding tool is to imagine whilst your walking that you are pushing the world around like a treadmill, and as you breath in pull down all the way from you head to the centre of the earth, and as you breath out push all the way back to the centre of the earth. Breathing gently and evenly is key as well as taking it calmly and slowly ~ if this is the sort of thing you would be into of course! :-)