What services would help?

There are very few specialist services, at least publicly-funded ones, for post-diagnostic support of autistic adults.

Meanwhile we hear figures of between 66 and 80% of diagnosed autistic people have mental health problems, and mental health services are rarely adapted or suitable for autistic people (how many MH professionals even pick up on autism and make a referral?).

What might support you or autistic people of any age to fulfil their potential and to avoid developing depression, anxiety and other mental health problems? What does good post-diagnostic support look like?

What would improve your quality of life if money were no object? What would you communicate to everyone about autism and your needs? Are there any skills that you would like someone to help you acquire? What would you be enabled to do? Design your own therapist or mentor if you like.

(Asking for a friend )

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  • I can relate to everyone else's answers here. I'm not long diagnosed and am shocked at the complete lack of ANYTHING for AS adults, I think it makes a mockery of the hundreds of UK services funded for children because the unwritten fact is that once these children turn 16 they're going to be dropped on their ass. As a parent myself (although as far as I'm aware my children don't have AS) I'd be frantic about this gaping hole in service provision. 

    As I'm in my 40's I've passed, whilst un-diagnosed, the stages where most actual service provision would have been helpful but I do strongly believe that adults need some sort of post-diagnosis support.

    Information for a start!!! The same basic (very basic) information is regurgitated from every so-called Autism Service I've contacted, If I have to read one more time "Autism is a lifelong blah blah blah" again I'll scream! Why do they all insist upon sending out the 'Ladybird Books' version? Where the hell is the Autism Dictionary / Encyclopaedia / official reading list / course material? I was even sent information on toilet training! In my 40's!!! 

    (Sorry. Overuse of the exclamation mark is the only form of extreme expression allowed by NAS. !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!)

    I agree with @Evan that a mentoring service such as he described would have been THE most helpful thing to find.

    A counselling service with counsellors who actually know SOMETHING about AS would also be useful. Even better if the counsellors themselves were on the spectrum and actually understood what we were talking about without assuming we wanted to be 'fixed' or 'cured'. I just want to understand myself and my diagnosis properly and at this rate I'll be in my 60's and still trying to make sense of it all.