I'm starting to get really angry, frustrated and annoyed at my local authority and the job centre. it seems that my local authority is actively working against people with autism spectrum disorder and judging us fit to work in environments completely unacceptable. by unacceptable, I mean that the workplace cannot make any sort reasonable adjustments, I keep coming across people like me who have been forced to work on livestock factory farms, worked in pub chains and forced us to keep doing free work experience with no outcome of getting employed.
my local authority requires an NHS diagnosis and refuses to take private diagnosis as evidence as autism spectrum disorder, the job centre have actively hidden organisations and services that are available to people who need genuine support. you have to ask for these service repeatedly before they will refer you to any of these services.
when it come to these organisations and services you have to be carful who is coach or programme leader because they will harass you into doing online course to gain qualifications that most companies and business do not accept as genuine qualifications. such as business administrations, retail and finical management. this isn't real support is a form of miss direction and at the end they are poorly managed and developed which means you don't finish them because of an external IT error and you have to pay out of your own pocket for not completing them.
I don't know how many of you who live in a rural location, that cant afford to obtain a driving licence because of the cost and the fact your going to need more driving lessons from the typical person, but how many of you have the same problems balancing like me who even though they are an adult they cant ride a bike, in my case I was in an accident on push bike with a tractor and I have lost the skill completely I can no longer balance my self, I have tried multiple time to get on top of a pushbike and it triggers a autism meltdown. they keep suggesting a moped scheme so I can access work opportunities but it completely unreasonable. multiple people have lost the life on the road between my home and the nearest towns. they even suggest I'm making excuses, I'm truly not.
I have been passed around by the job centre to organisation such as the princes trust, up lift programmes and Shaw Trust. I honestly if I had the opportunity would love the opportunity to go back to college but this time round have access to routine transportation and support that I didn't have the first time round because the local authority didn't accept my private diagnosis and set up a support group in the local community centre so I can understand from other people on the spectrum how they cope with the difficulties and form strategies that actually work. but I haven't got a clue how I go about setting that up.
Personally I have had so many jobs, working on livestock farms, working in a pub, working in the care homes, working kitchens and even work in retail and if it not the staff physical or verbal assaulting me it a customer or client doing it to me. but nothing seem to be available for someone like me. moving house isn't an option until I have fulltime employment before anyone suggest it.
at the minuet my job centre is trying to bully me and another person on the spectrum to do an apprentice in a meat processing plant or a livestock apprentice.
That sounds difficult. There are some people in Job Centres trying to help, like Disability Employment Advisers, but now they aren't 'customer facing' as I understand it. I hear good things about the Shaw Trust. I grew up in the countryside and yes it's a real pain if you've no money and can't drive.
It sounds like lack of an NHS diagnosis has been an administrative problem - have you considered going for one? An NHS diagnosis probably starts from scratch but takes into account the private diagnosis. The waiting list can be a few months or a couple of years. It might also give you access to occupational therapy (OT), which could look at things you can do, and maybe help you getting back on the bike. There are OTs who have experience with autism and should at least understand 'from the outside'.
That may not be much use, but just wanted to let you know people had read what you'd written.
In situations like this I do suggest considering looking into possibility of setting up your own employment in order to gain more control, particularly in the online space as it is well suited to us. If that interests you let me know a bit about your interests and I maybe able to spitball a few ideas.
Re transport, my mother had an adult tricycle after her 3rd broken leg (I think, we lost track a bit as her medical history got really complicated) would that be of any use?
Do you know what direction you want to take? What you want to do?
Unfortunately, we are not able to offer direct support to people who are searching for work. However, there are some other organisations who may be able to help:
The British Association of Supported Employment, who have a database of supported employment agencies, so you can search for one in your local area: www.base-uk.org
Remploy, an organisation which supports people with disabilities and those experiencing complex barriers to work, into mainstream employment: www.remploy.co.uk
is also a good website to look at. It is a site on which employers advertise their opportunities for people with disabilities and they also provide information about disability and inclusive practices within their organisations. This is a good way to identify companies which will be keen to put in place reasonable adjustments for interviews and throughout employment.
I have also included a link to our job-page - http://www.autism.org.uk/get-involved/jobs.aspx. Within this page you can click on our job and volunteering page to find out about our current employment and volunteering opportunities with The National Autistic Society. We particularly welcome applications from those living with autism.
Volunteering can often be a good way to gain relevant experience and skills for future employment. Your local volunteer centre may be able to assist with finding a volunteer placement. You can search for volunteer placements on https://do-it.org/
Finally, if you are contacting employers directly and want to give employers information about autism (including Asperger syndrome) and reasonable adjustments, you could send links to fact sheets on our website - What is an ASD - www.autism.org.uk/what-is-an-asd and Recruiting Someone with an ASD - www.autism.org.uk/recruiting
All the best,
I now have a NHS diagnosis for autism which I received July 2019 but the problem is that I had to go through multiple different organisations CAMHS, adult autism services and mental health trust to get the NHS diagnosis from the age of 16 it took over 6 years to get the diagnosis I am month away from being 24. I've asked my GP and social services for occupational therapy for the bike issue among many and they keep saying I am to high functioning, despite waiting to be further assessed for commodities such as dyspraxia, dyslexia, amphatsia , sensory processing and myoclonic jerk. honestly it feels like I've now got the diagnosis and keep getting told by others I need the help but the local authority attitude is your high functioning and only little bit autistic because I mask it to my best of my ability.
its frustrating because I'm now going to hit the age where all the option are now taken away from me because I have had to wait so long.
if anyone is suggesting why my parents haven't tried to help its because they work 7 days a week and work erratic hours with livestock, I'm youngest one of 8 children from a blended family, what ever they do for me they have to do for the others, this attitude that enforced by my siblings onto my parents. my parent abuse cannabis and my step dad doesn't think he or my mum should help in anyway. if my mother attempts to help by driving me into an opportunity my step dad soon see that she cant do it by altering their hours (they work together) the major problem with this is any sort of routine I get into my step dad and older brothers actively interrupt it, I think they like it when I have an autism meltdown within my room. yes I have thought of moving out it not possible without support and intervention and my mother doesn't want me to leave.
I've looked into to tricycle, to expensive at the moment, my benefit is only covering my board and my food at the minuet. we have this conversation on here before. I've changed my user name, im the lad who worked on a pig farm with his brother and got repeated physically and verbal assulted and had a mental brakedown.
Just caught onto that as I looked at my messages, sorry for the repeat. Loving the name change btw, :)
Glad you're still around, for what it's worth I'm rooting for you
No, it more of what's available to me situation, what I can get access too. all I want is a work place where I am not going to be physically or verbally assaulted or set up to fail. or involuntary forced to take part in illegal activity, some of the stuff I have witnessed on live stock farms, pubs and kitchens have been barbaric, dangerous and disgusting . where I genuinely feel safe. I have had thoughts of something to with IT, Animation or a trade but right now working in office would do.
If you like, send me a copy of your CV (just please be careful to remove/blank out details like name/address, employer and school's names, other identifying details, I don't want to be breaking NAS rules). I have some inside info from employers and would be happy to give it a review.
Normally I'd offer this more, but I am a bit nervous of anything close to breaching rules so do remove those bits first.
thank you for the offer but my CV is great apparently to the princes trust, Shaw trust and the uplift programme and I have the skills to alter it to suit the job application myself, its the interviewing stage and the type of job and work place culture i have probelm with. i usally take the first job offered and their usually classed as low skilled. they usally so wiling to hire me an look passed the autism because their staff turnover is bad . I have never experienced a job where I haven't been made to watch illegal activity, some of the stuff I have seen has be horrendous things to live animals for the fun of it. the reason these people are still employed is because they close ranks amongst one another and their is never any evidence to prove what they have done or they scape goat it on me. even working in one of Britain best employers in a pub I have witnessed and been forced to do some dangerous stuff.