Now that you have asked your doctor and they have put your forward for a diagnosis. The diagnosis can be 10 months or more. In this time you may get a further pre-assessment. Perhaps they will send an AQ10. Later they may ask you to come in and then you should get a diagnosis. Which you can disagree with.
The government and autism activists have moved heaven and hell to safeguard people with autism. And you will welcome this when it comes. But what about before?
There is legislation which helps suspected people without an autism diagnosis but this is hard to come by. I have written this guide to help me and those currently waiting for diagnosis and having a hard time. Funny because they have difficulties like autism but have not a diagnosis.
Bookmark share. Add comments if something needs changing or being updated.
This guide does not include convincing your doctor, the fabulous autism.org should be your home page. Just a valuable prompt to get help whilst you wait.
I have read this and would like to provide some feedback (Autism/Asperger's not yet diagnosed and waiting) to help:-
Equality Act 2010 is there from a legal perspective, others have highlighted useful sites/links on the forums BUT for anyone like me it is TOO MUCH INFORMATION and not bite-sized chunks. MIND is also good (albeit I see most of the effects come from the different wiring and inputs that then create the crisis.
You can also use a computer/phone/tablet to create, edit and amend things electronically in notes.
Finances is a difficult one with everyone different (Bipolar Disorder is one with mania's that you do crazy things when high e.g. spending splurge).
Get in the internet BUT only use officially recognised sites (NHS, Wikipedia, here) and do not take it literally from one place - from an engineering mindset you need it validated/verified from two independent sources. Remember no two people are alike and have/show behaviours/traits differently based on the same input triggers - I thought I may be Bipolar but it is now likely Autism/Aspergers.
Council is only relevant if in rented accommodation, private is another matter. Note I understand that you can get a card from NAS/Council to say you are autistic and there seems to be better things in place for air travel.
With your employer, be careful as they can still over-ride a GP note I understand but keep pushing it is your NEEDS for Mental Wellbeing (get all the company procedures on health, etc) not their wants. Do not be badgered/forced into accepting something and state you are following their rules/wants and it may still not work.
Thanks Disambiguating Cynosure - Stress/ANXIETY and Depression are high probability factors with the conditions and ensure you emphasise Stress/Anxiety to you menas the same thing. I only found out lately that the keyword with my Occupational Health is ANXIETY.
With my IT hat on, wouldn't it be nice to have this somewhere with easy access in small bite-sized chunks not buried in a page of words/lost down the forum articles.
Firstly I enjoyed your post. I think you also have a love/fascination for law too. I was hoping I would get someone who actually understood needs rather than diagnosis. My Working tax credits disability was based on need, and some evidence, and a lot of persuasion.
I wanted to find out what else is based on need rather than a diagnosis. Like the adult social services assessment.
Looking at the Equality and disability act, can I just say that I have autistic needs?
"3. Do I have a disability?To be protected under the Equality Act, you must meet the legal definition. Disability is defined as:
‘a physical or mental impairment which has a substantial and long-term adverse effect on your ability to carry out normal day-to-day activities’.
If you meet this definition you will be protected if someone discriminates against you because of your impairment.
There is no need for you to have a medically diagnosed cause for your impairment; what matters is the effect of the impairment on you. And that it is long lasting, affect normal day to day activities, do you have a physical or mental impairment" - www.disabilityrightsuk.org/understanding-equality-act-information-disabled-students
The autism guide (actually a statutory document) gives some indication that autism is not just traditional autism;
"terminology - Throughout the guidance, as in the strategy, we use the term “autism” as an umbrella term for all autistic spectrum conditions, including Asperger Syndrome.
Many people with autism also have related hidden impairments such as attention deficit hyperactivity disorder, dyspraxia, dyslexia, dyscalculia and language impairments as well as associated mental health conditions and linked impairments that may not be obvious to other people." - Statutory guidance for Local Authorities and NHS organisations to support implementation of the Adult Autism Strategy
Are we just autistic or not? The reality is autism is a "life long condition". And it's the diagnosis that is transitory. So Everyone on the planet is shrodinger autistic. You just need a diagnosis and whoa!
However, waiting is pah. I suspect darkly some do not make it to diagnosis.
I would love it to be on the main site too. Please ask them. I have asked the autism alliance, but can't remember asking NAS. Sorry I forgot. :D
Lagrangian - I have a lifelong undiagnosed condition and am awaiting clarity on what it is, understanding more about how it affects me and the impact of it on how I function. I am sorry if it looks too law focussed but with the logical/methodical approach I have then that is how I come across.
With Employment, the Damagers/Muppets do not listen because they know best BUT are only focussed on their WANTS and not my NEEDS (as defined by Company Procedures/etc).
I actually have three disabilities/impairments but I do not view it as that and to everyone I am "normal" albeit eccentric. Now whether my mental condition is Autism or Aspergers (High Functioning Autism) then that needs full diagnosis by qualified/experienced people. People with Autism/Aspergers can also have other conditions of the mind too (ADHD, OCD, Dyslexia, etc) which can become prevalent via Meltdowns/other Mental Conditions (Anxiety Disorder, etc).
I have functioned normally, excelled at everything I can do and since the bullying manager came on the picture I have gone literally through the floor towards the opposite side of the world. His focus is Directing/Dictating and non-negotiable and I was the train wreck - never asked how I was feeling, how could things be changed/improved. The only break I could have was to get signed off by my GP and even then Work seem to think company wants/needs are what I need.
I agree with you that the wait is too long but the NHS has too many chiefs/bean counters/ and not enough braves. Until Mental Health awareness reaches the visibility of PRIDE then it remains catch up.
My fixation is on what I know is the truth and logically right. When I know I am right then nothing can change my mind - do not tell me anything contradictory/ambiguous, do not tell me I have to change, it is all my wrong perceptions and in my head.
To quote myself (stuck record):-
Eccentric1 said:With my IT hat on, wouldn't it be nice to have this somewhere with easy access in small bite-sized chunks not buried in a page of words/lost down the forum articles.
Most of the internet is focussed on the Neuro Typical and to me it is simply TOO MUCH INFORMATION so why not have these simple "Post-it Notes" on/as pages with links to help us understand these bite-sized chunks?
Sorry, you are experiencing this. I had a work colleague who was picking on me to mask the fact that his dyslexic son was making mistakes.
I think Mind has a very good website. Everything is set out in byte-sized (post it notes). and for websites that don't do this I use MindMaple and google docs.
I think you have a clear case of discrimination. double check here if it is anything like these - https://www.mind.org.uk/information-support/legal-rights/disability-discrimination/types-of-discrimination/#.XLWuS5PAQWo
Also, see here for workplace discrimination in specific areas. https://www.mind.org.uk/information-support/legal-rights/discrimination-at-work/#.XLWtxJPAQWoIf you prefer call mind, and NAS and the Disability law service until you are clear in your mind. I would also keep a diary of what is happening. You can backfill the date before for comparison some entries. Give some examples comparison of the same work before and after the new boss.
The guy is probably jealous of your large brain.
They suggest being informally challenging it first. (in my 20 years of experience this has never worked).
I would suggest lawyering up.
And have them handle all your interactions. The disabilty law service has a thing that if you are in london they can represent you. If you are outside they can povide advice. https://dls.org.uk/
Because when a company sees a person by themselves they circle wagons and (deleted word) with them.
Not to worry, I'm methodical/logical and have all my ducks in a row with this - the NT/bully has no idea yet what I have done/got.
It'snot fair that you are being treated this way. Fairness autism gene kicking up a gear - Remember most bullies were bullied. And that an NT is sometimes an ND in disguise. And we can't pick our diversity.
I strongly suggest getting legal representation.
Most Law Clinic which is free provides legal advice and representation if it's really serious. I think you area is more than covered.
I’ve faced bullying from my employer for about six months, and know there have been talks of dismissal. They put everything down to a perception issue, that due to me having autism I perceive things wrong. I’ve asked some of my friends and quoted the exact words back that have been said to me and my friends have said it’s bullying. Ive had to leave a few times due to getting overwhelmed with different things, and now I’m being told there’s questions around my capability.
eh. go to a CAB, and a free law clinic and email the disability law service.
Take a friend, call or email but get help. I know it might seem that It's better not having to go into a job that is bullying you. But it should be by choice not by bullying.
click here https://dls.org.uk/free-advice/free-full-legal-representation/