There is a new paper out entitled, ‘‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality.’
This quote really summed up how I feel:
I am high-functioning and an adult … I feel ‘lost’…. I am toohigh functioning for most ASD programming in my area, butnot neurotypical enough to function well in conventionalwork and social situations and environments. (650F)
Deleted User said:CBT is mentioned as being useful for some people, and not for others. Whether this is due to some individuals being more responsive to CBT than others, or because of a regional disparity in quality or practice is not explored.
Another factor could be related to age. How many of the 280,000, I wonder, are late-diagnosed - like myself - and have therefore much more work to do in trying to unpick a lifetime of 'faulty' emotional responses (compounded by co-morbid mental health problems)?
I have written to Sarah Cassidy, mentioning my own case briefly, and saying that I currently feel on the edge of breaking down completely. Even with trained professionals, such as the ones offering me support at work, the focus is still on behaviour management rather than on trying to gain a proper understanding of perceptions and responses. I think they are probably getting tired now of my constantly sending them papers relating to research studies. The tendency for them to 'normalise' my experiences - to see and assess them solely from a neurotypical perspective - doesn't increase my hope of a broader understanding.
A late diagnosis may give an explanation for past difficulties, but given the lack of support, is unable to offer any promise of a better future, nor relief from the grievous sense of loss and waste.
I wonder if the support issue is a UK thing rather than a "lack of knowing what to do thing?" I only have a sample size of one, but this Scandinavian/Nordic woman I happened to come across on YouTube seems to have a much better handle on how to manage her issues https://www.youtube.com/user/TheAnMish. I believe she's currently studying a Psychology degree at University. From what I've seen in the videos I've looked at, it seems to be quite draining to her, but she seems to have coping strategies in place to cope with them. I think she also does quite a lot of ASD advocacy as well and also has to manage the energy demands etc. of that.
Now it could be, that she just happens to have had the wherewithal to suss things out for herself, but as I understand it, I believe she was diagnosed quite a lot earlier than a lot of us, and maybe there were support strategies, interventions etc. that helped her to work things out.
Maybe things are not so straightforward for the later diagnosed of us, because I infer that a lot of us have been quite damaged by our lives in various different ways, but maybe there's some ideas out there...
Windscale said:Now it could be, that she just happens to have had the wherewithal to suss things out for herself, but as I understand it
And there lies the rub. It I shall one thing to tangibly suss out the unknown of your own autie self but another to have the agency, skills of articulation, and support to take the next step?