There is a new paper out entitled, ‘‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality.’
This quote really summed up how I feel:
I am high-functioning and an adult … I feel ‘lost’…. I am toohigh functioning for most ASD programming in my area, butnot neurotypical enough to function well in conventionalwork and social situations and environments. (650F)
Deleted User said:CBT is mentioned as being useful for some people, and not for others. Whether this is due to some individuals being more responsive to CBT than others, or because of a regional disparity in quality or practice is not explored.
Another factor could be related to age. How many of the 280,000, I wonder, are late-diagnosed - like myself - and have therefore much more work to do in trying to unpick a lifetime of 'faulty' emotional responses (compounded by co-morbid mental health problems)?
I have written to Sarah Cassidy, mentioning my own case briefly, and saying that I currently feel on the edge of breaking down completely. Even with trained professionals, such as the ones offering me support at work, the focus is still on behaviour management rather than on trying to gain a proper understanding of perceptions and responses. I think they are probably getting tired now of my constantly sending them papers relating to research studies. The tendency for them to 'normalise' my experiences - to see and assess them solely from a neurotypical perspective - doesn't increase my hope of a broader understanding.
A late diagnosis may give an explanation for past difficulties, but given the lack of support, is unable to offer any promise of a better future, nor relief from the grievous sense of loss and waste.
Yes, that "now what?" tumbleweed moment!!
Logician, heal thyself.
Ah.... But what if I dont want to be healed??... just understood and to reach my own existential understanding and inner peace. To be understood is different to being "accommodated" or "made adaptations for" - hence the articles very apt reference to "double empathy"
"Socrates: ...Can you point out any compelling rhetorical reason why he should have put his arguments together in the order that he has?
Phaedrus: You do me too much honour if you suppose that I am capable of divining his motives so exactly. (Plato, 1973: 78).
Those western philosophers were crazy guys, but they had a point!
“To borrow Heidegger's definition, the world is "that in terms of which human reality makes known to itself what it is.'' The possible which is my possible is a possible for-itself and as such a presence to the in-itself as consciousness of the in-itself. What I seek in the face of the world is the coincidence with a for-itself which I am and which is consciousness of the world.” Being and Nothingness, J.P.S. (red packet).
recalcitrant (DO NOT APPROACH) said:Ah.... But what if I dont want to be healed??
The GP I just saw at the hospital asked if I'd tried CBT. I said I had - and 'adapted' CBT - but it hadn't really worked. I added that I didn't actually want to change in order to adapt to society, but rather I wanted society to accept me on my own terms. She shook her head. 'I think you'll wait a long time for that.' I asked her if she accepted that 'disability' was largely a social construct, and she diverted to the line that all of us have to conform in one sense or another.
Not worth pursuing it with her, anyway...
Well, if we are going to get all academic and deep then who better than the Donald!
"There are known knowns. These are things we know that we know. There are known unknowns. That is to say, there are things that we know we don't know. But there are also unknown unknowns. There are things we don't know we don't know." - Donald Rumsfeld
So, it may be for-itself, in-itself, but may ultimately destroy-itself, or much ruder... what happens next with the known knowns and known unknowns and what SHOULD happen??? ... whose decision is it?
When differences in disposition and social understandings have foundation in neurological diversity, how much interactional expertise is possible? Is something always ‘lost in translation’?
Is some level of expertise in what it is to be autistic on the level of lived experience always beyond the grasp of nonautistic researchers?
Is understanding autistic experiences, a more nuanced version of understanding the perception of a bat (Nagel, 1974) or attempting to speak to a lion (Wittgenstein, 1953)?
And has anyone bothered to say Hi to the Elephant? :)
Hi, Ellie. I think the 'double empathy' question is still relative. We don't lack 'theory of mind' - we simply have a different conception of it.
Have a read
Theory of Mind is not universally accepted. I prefer the phenomenological approaches. Here is one of the main alternatives.
Understanding Interpersonal Problems in Autism: Interaction Theory as An Alternative to Theory of Mind
As a footnote to Rumsfeld - the Unknown’s can then become assumptions, generalisations, presumptions and the gap between knowledge and ignorance perpetuates.
Terms such are high functioning are misnomers
Also worth a read.
now... DSM-V is another matter....