Sensory issues, please tell if you can relate

Hi Everyone. English is not my first language so I do apologise for my grammar and mistakes.

I’m new here and I think I’ve got Asperger’s. In AQ score 44 and similar in other tests available. 

Self diagnose is the only option for me at the moment so I’m desperate to find out if someone can relate to my story. 

I’m 33 years old, I’m a husband and father also recovering addict. Sober for over 7 months. 

I’ve got loads of questions but for now I’d like to share my challenges regarding sensory overload.

Some smells (specially cigarettes, air fresheners and cleanings products, perfumes even my own or my wife’s) make me so uncomfortable so I have to stop breath, it literally feels like something grabs my throat and won’t let me breath in until the smells disappear or is less intense. I usually end up with head and chest ache.

Noises and sounds, I’m struggling when sounds comes from more than one source for example when watching TV I tend to put the volume up until I can’t hear background noises until I hear them I can’t follow what I’m watching. Many household noises make me jump, I’m not freaking out but don’t feel comfortable. When we’ve got somebody over for dinner usually I’m overwhelmed with the situation when there is more than one conversation. After a "nice" evening with friends I'm exhausted and don't want to do it again.

Noises like knocking pipes etc bothers me while others seems to not notice them, the same with my car I always hear something coming from suspension bearing etc and then go to a workshop and nobody can hear anything it happened some many times so at some point I've replaced the whole suspension in my car all bearings etc spend 3K and still hear noises which bothers me.

Some textures and fabrics make me feel very uncomfortable I get pins and needles, the worst feeling is when I'm dressed smart and start to sweat so when the fabric touches wet skin i'm freaking out and usually sweat so badly that I have to leave the venue and get change.

Cold is painful but I think the worst is the moment of change so I stop breathing had to brace myself and after a while I’m “ok”. 

Hot - shower which is a challenge o its own (all those changes of temperature) water has to be body temperature I wouldn't be able to have a shower like my wife does I would scream.

Hot weather, specially sunshine is a challenge, again I sweat feel overwhelmed can't breathe 

Quite often I hear "Everybody sweats or is tired after shopping" etc but it feels that it affects me more and in so many aspects of life ... 

Thanks for reading.

Janusz

PS All of above can vary so there are moments when I'm less bothered but specially when tired emotionally I literally can't breath at times. Also none of this is new to me but it seems that for quite long time I was automatically avoiding or coping with sensory issues assuming that this is normal... don't feel normal I'm exhausted!!

Parents
No Data
Reply
  • Hi Janusz,

    I can identify especially with the sound issues.  I tend to notice the minutest of sounds that others probably wouldn't notice, and they can become acute sources of irritation.  My storage radiator in my bedroom 'ticks' when it comes on at night, so I end up either having to turn it down or put in ear plugs.

    I find it very hard to tolerate noise on public transport, and with the advent of mobile technology I find myself constantly having to move seat if I use a bus or train.  I can't tolerate noise if I'm driving, so always have the radio off - which some people think is very strange! 

    The other sensory issues you mention are very common with autistic people - especially colours, textures and smells.  I work with autistic people, and they are either hypo or hypersensitive.  One of them refuses to wear any underclothing... yet he can go out in thin trousers and t-shirt on a cold day and not feel the cold.

    Don't you hate it when people say 'Oh, everyone does that' or 'Everyone gets that feeling', etc?  It's that gap of understanding.  Would they say to someone with Parkinson's Disease 'Oh, everyone gets hand tremors from time to time'?  Of course not!

    Your score is close to mine - 42.  I was diagnosed formally nearly 3 years ago, and it's made a big difference to my life (in positive ways).  Many people self-diagnose, though, because they don't want to go through the process, or they feel it will give them a label, or any number of other reasons.  Everyone's welcome here, though.

    All the best,

    Tom

    PS  Your English is excellent, by the way!

Children