News items from the latest 'Benefits and Work' newsletter. They may be of interest to anyone on ESA, PIP:
Benefits and Work Latest News
I am in a process of applying for Personal Independence Payment.
I also might be eligible for Employment and Support Allowance. I am in work but really struggling there.
I am wondering, it is worth to subscribe for Benefits and Work Claimants and carers subscription plan?
Do they have information that is not available elsewhere for free? Can I find the same information elsewhere online for free?
Would the website be helpful if I am claiming because of autism related issues?
How good is their forum? Do they send from e-mail notifications?
I’ve subscribed, I’ve had a quick look over their info and it looks very good. I won’t read it in any more detail until the time comes that I need to. I’m currently in receipt of universal credit but my work coach assured me they would do an assessment on me soon so when I get word of that, then I’ll read the info so I’m prepared.
I was told by the Department for Work and Pensions that they prefer people to be in work.
Apparently, it does not matter at what cost to their health and how happy they are there.
I can do only the minimum there. I have no resources and energy for anything more.
Employment and Support Allowance would help me a lot but I cannot get assessed if I am in work.
And if I leave the work, I do not know if I will get it.
So, I am stuck.
I failed my first assessment for the support group so they put me on universal credit, they said they could see that I currently had difficulties but that one day I would get back into work. This is true, I agreed, so they put me on universal credit. But what they didn’t tell me was that I would have to start looking for jobs so when I realised that at my first appointment, I told them that I would not be looking for employment and that I refuse to take any old job that suited them but not me. She eventually brought the manager of the job centre over to speak to me to reassure me that if I give them sick notes, they will turn off the Job search and when I’m ready for work, they’ll give me all the help I need and that they will never try to make me do a job that’s not suitable for me. That worked out ok for a while but I don’t want to go in there any more. My job coach is great but I told her I don’t want to see her anymore, it’s doing me more harm than good going in there now so she said she’ll arrange for an assessment for the support group and in the meantime, I don’t have to go and see her as often, so I’ll just wait now until I get that appointment date then I’ll read the info.
Be careful of leaving work. They used to have rules about that so it’s safer to go on sick first until you know the score.
The work group is good if you’re looking for work or looking for what kind of work will be most suitable to you but I’m not looking for work so I don’t think I should be in that group.
I just feel that I suffer every day and this does not fit me at all.
I simply want peace and to be alone. I am so tired.
What is the point of life if I am so unhappy?
Get some advice and support. Phone the NAS helpline and speak to somebody. I’ll get you the link for the number, it might have email support as well, I’m not sure. But please don’t try to cope with this by yourself. It is hard and it is a struggle but with the right support, you’re life can be a whole lot better. I feel for you I really do and I would love for you to get some support with this. I’ll look for the number now and the link.
Here’s some info about the help line www.autism.org.uk/helpline
I understand that California. I think that what you need right now is some suppprt so you can have some time to rest. This has been most helpful to me and I understand that I am often (it appears) a bit more forceful in my appraoach than many people, in getting my needs met, so I know it’s not as easy for everyone. Please will you contact the NAS helpline and tell somebody how your feeling? Your life is so precious, even if you can’t see that just now. You are important but it’s not easy for you to see that just now and I can see why. Having to do a low paid job that brings no joy and leaves no energy for anything else can be soul destroying, especially over time. That’s why I told them I wouldn’t look for work. I understand the situation you’re in and I urge you to get some support. I wouldn’t be where I am today without support. While you’ve still got some strength, please get some help. Life will start to get better for you once you’ve had some rest, some alone time and some support. I care for you deeply because I’ve been in your situation. I only got out of it by accepting I needed support and getting it.
Thank you for trying to help me!
I feel that the coping strategies and masks I wear are actually the dead end.
I simply try to suppress myself and please others. I am exhausted.
There is no point to live like that. I am not happy. I want to be myself.
I have been sick several times. Mostly, when the manager became demanding.
I felt so good and happy finally to be alone. I even cannot describe. I almost want to cry.
The problem with me is that I am really shy and quiet. I always try to avoid conflicts. I am not forceful in my approach and in getting my needs met.
I know that my life is precious and this is not how I want to live. I am trying to find a way out of this misery I experience somehow. I just do not know how to do it.
My life is not about the money. I just want to be happy. I want to keep my budget in balance.
I am now trying to drop the masks I wear. This is difficult as I have to go against what others expect from me and say ''No''. I am unhappy that I have to say No but at the same time I am happy that I do not have to do something I do not want to do.
You are brave. I wish I would be that brave. I feel that I am slowly going in that direction. It just takes time.
It does sound like you are unwell at the minute. As well as contacting NAS I also suggest you speak to your GP about your difficulties to see what support you can access, such as a fit note.
I spent two years in an awful work situation that made me really ill. I am now out of that now and have a supportive manager, which has made the world of difference. Have you thought about changing employment to something that's more suited to your needs? For example, I can't work with a demanding manager and need one who is happy for me to work independently.
I am trying to find something else. I also want to work independently and from home. But job interviews are really horrible experiences for me. I am extremely anxious. The best I can do - Yes and No answers. I cannot explain anything and say something meaningful. Just say words and I think they do not sound like normal sentences to other people.
I am now in an open plan office which is a nightmare. There is even radio.