Published on 12, July, 2020
I was wondering if it is all about my bad luck or it is just reality. My son is 4 years old and has been diagnosed with ASD. He has sensory processing difficulties too. I remember that after a diagnosis what we received was a leaflet with information about the disability and nothing else. Luckily we have S&L therapy sessions but it is every three months?! Today I read that: "Experts believe that the first 5 years of the child's life are the most crucial and that is why intensive help before school is important, although intervention at any age is beneficial.". My question is: who is responsible for that intervention in this country? Rich parents who can afford private treatment? I fight for better life for my child and NHS specialists say that they cannot help me because of long cues or lack of government funding.. Does it mean that this country leaves us with no choice? I am so disappointed and do not know what to think about it whether it is a problem that we are not British or it is the same for everybody living here in the UK. Maybe I am wrong, but I feel that you fed up with immigrants and it is understandable. On the other hand everyone should be treated equally because it is not our fault that our child experiences such difficulties. Every parent wants to have beautiful, healthy children..
Hi I am new here I share in most parents frustration with certain aspects of the Nhs I guess sometimes I feel like I am banging my head against a brick wall. My son is 12 and for years I have felt I have constantly have to explain my sons autism to people who should have a better understanding and knowledge of why he has meltdowns and doesn’t want to do what they ask of him at times my son has been called uncooperative yes really a child with autism but this is not the worse comment I have ever heard. I attend medical appointments with my son and often I feel what’s the point did it help him no not really, the sad fact is my sister is autistic and in her 30s and really at times I see no change in how autism is treated in today’s society when we are told that the people we place ours child’s care in their hands really don’t have any understanding at all and believe all autistic children are the same and all comply the same, I actually cried today and I am quite a strong person but I really did see the failing of the nhs that I didn’t want to believe was there but it’s not just the nhs it’s all the other interventions the speech therapists the specialist teams and country councils input there is a massive failings in the lack of fully understanding autism and the way it affects the people and families who live day to day with it. I send massive hugs because I feel so passionate about this and hopefully one day things will change I say that with fingers crossed xxxx