I feel so desperately sad and guilty for getting my son his diagnosis. Ben is 14yrs old and was diagnosed early this year. He has really struggled with what he perceives to be a horrendous label. Last night he got so upset and angry he smashed half the room up shouting how he hates the teacher that first mentioned getting him assessed and that he wakes up every morning scared friends will find out and he feels that each day is as bad as if he heard I was dying and he would rather die than go through each day feeling like this. I feel so guilty that I went through the assessment process, I feel like I have ruined his life when all I wanted to do is get him the help to achieve as much as I now he can achieve. I know he needs counselling to get through this but at the minute he refuses to go anywhere that is anything remotely to do with 'The A Word' as he calls it.
As a teacher parents say..I want him assessed...but I don’t want him to have a label....diagnosis is useful...stigma is quite another thing
oktanol said:Hi nen67t, I can definitely emphasize with him (how's that possible, aren't we supposed to be really bad at that?).
In terms of 'us' feeling empathy with other autistic people, the expression "Each to their own," has some baring, involving emotional identification on account of similar or likewise ranges of experience ~ autistic 'sense and sensibility' sort of thing..
Perhaps you and others might find the topic of 'autism and double empathy' to some extent relevant as covered in the following PDF link:
Or else consider just the following from it:
The double empathy/cross-neurological hypothesis of Milton and Beardon can be summarised as follows:
(1) non-autistic people appear to have as much difficulty in understanding autistic minds as vice versa.
(2) autistic people often develop a greater understanding of society than non-autistic people develop of autism; and
(3) autistic people have a similar ability to empathise with other autistic people as non-autistic people have with their peers.
In order not to open a discussion here and go off topic from nen67t's inquiry, I have started a thread featuring this information ~ just in case people are inclined to discuss it, with the NAS link being: