hi my name is blue (that's not my real name but i'm going with it) and when i was in elementary school i was diagnosed with high functioning autism or Asperger's syndrome but basically autism and my life is good but it's still been hard at times. so anyway i'm here to meet others like me or people with experience on autism and i will ask for help or ill try to help you guys with the experience i have gained as well and i'm here for fun to as well as the other reasons. so ask me a question if you want or ill ask you one but let me start with this...should it be autism awareness or autism acceptance.
Tied into such complex and tricky semantics of language is another related question I've often thought about, which is linked to the topics of awareness and acceptance...
What are we best calling 'it' ?!
"High functioning Autism"? - Personally, that doesn't taste right to me, as there somehow seems an inherent value judgement on those people deemed 'low functioning'.
"Autism"? - I suspect the Neurotypicals just hear this as 'learning difficulties'.
"Asperger's" - eh, what's that?!
"Asperger's Syndrome"? - ooh, I have a syndrome now?! Too pathological.
"Autism Spectrum Disorder"? - ouch, the last word is loaded with waaaay too much negativity.
"Autistic Spectrum Condition"? - again, too medical... and negatively loaded... as most people want pills and procedures to cure 'conditions'.
"Neurodivergent"? - way to obscure for your average NT.
My personal preference would be 'Neurovarient'. Alas, I just don't think that's ever gonna catch on.
We need to sex it up a bit, in the interests of Public Relations and raising awareness. How about, "God Mind"?! ;-)
("I'm so sorry for my meltdown, it's just that I'm lucky to be blessed with God Mind - and I therefore see and experience so much of the complexity that you Mortal Mind's don't")
Evan said:"Autism"? - I suspect the Neurotypicals just hear this as 'learning difficulties'.
yeah, they really do. I got an airline to make a note that I have AS on my booking, just in case I have a meltdown on the plane (this happened once and I was completely unable to explain to the staff what was going on, which was not nice for me or for them). When I looked at what they had added, it said "learning difficulties". This could not be further from the truth, so now I worry that they will take one look at me and decided that I clearly don't have learning difficulties and am therefore scamming them ..... and they make much of "looking after people with hidden disabilities". Sigh.
If we come across people who are not aware of autism, we can help by educating them. I was unaware until I realised I was autistic. I had previously thought learning disability when I thought about autism. We’re all on a big learning curve. Maybe, with the airline, you could write out, as succinct and as clear as possible, what a meltdown would look like for you and what they could do to support you in that situation. That way you will feel safer and more confident and so will they and they will know how to support you if a melt down happens and they will be more aware of others who come on their flights.
Yup, that's exactly what I did .... and explained that if in the throes of a full on meltdown, I am not able to communicate what the problem is, or anything much really.
They were very good in terms of booking fixed seats, so I know where I will be, and allowing me to pre-board. I am just a bit worried that if all the detail the staff have is "learning difficulties", they would not be best placed to help if anything does go a bit wonky!
That’s great mogsy. Don’t worry about what they have written down in terms of a ‘diagnosis’, all that matters is that they have clear instructions of what to do if you do have a melt down. That’s reassuring to know that they are looking after you so well, it sounds like you’re in good hands and I’m glad you shared that info with us, it’s useful to know. Maybe you could buy them a little treat, as a thank you. That will make them feel good and they’ll have a positive association with autism. I talk about autism with people all the time, when I do ever leave my house and come into contact with people, that is. We have to show people that we come in all shapes and sizes, we’re one big family, but we’re also a part of society, so they might as well start to get to know us, because we’re not going anywhere. Apart from on aeroplanes some times :-)