Published on 12, July, 2020
Hi, I'm relatively new here. I have suspected that I might have ASD for several years and am looking to get an assessment to make sure. I think the symptoms describe me very well, and I would like to know the answer. However, on the majority of NHS and private clinics websites, they would like you to bring a family member for the assessment. And I feel the request to bring a family member is a major barrier. One reason is that there is so much stigma associated with ASD, I am quite sure my parents would not want me to get a diagnosis. Some clinics do offer assessments without relatives' involvement, but add that it sometimes may not be possible to reach a conclusion without enough information. I don't have any close friends I can take with me to the assessment either. I was wondering if anyone has ever been through a diagnosis assessment alone and can share their experiences. This would be very helpful!
Hi there, my experience of being diagnosed with autism at the age of 15 came as a surprise to say the least. Before the diagnosis, I struggled in education both primary and secondary school. I got the verbal abuse, threats, name-calling, explicit/sexist comments...
My Mum knew, from when I was in nursery something wasn't quite right. But, she and many others had to endure through the trials and tribulations, sleepless nights, heartache, upsetting scenes. The situation got so bad I didn't see any hope let alone a future. During meal times, I would hide in the boys restroom, or isolate myself from being with others. When, I got home, stay in my room, close all blinds, curtains, doors and windows.
I didn't have a quality of life or self-worth. I didn't value or appreciate myself or life in general. I was crying out for help and felt like there was no way out.
Leading up to the assessments, psychologist, psychiatrist, speech and language therapist, going to various hospitals or services, backtrack all documentation of education, family, personal life, answer questions, or act out scenario etc. At the time, use of other services such as Together (being one of them)
It was a long process but looking back now I am free of the hurt, pain, suffering, anger, upset. Ultimately, no more drama. Now, I can live he life I choose to not by somebody else's preferences or command. I am my own person and I want to embrace and own that in every opportunity.
I did go to College to study for various courses, attended workshops on my preferred field. Saying that, I tried to engage with others but I haven't yet formed a close friendship or relationship as such. But, I am working on things like that and more each day gradually. I even had a work placement with an organisation that specialises with working with both young children and adults with autism. Plus, went to volunteer for a service with elderly people at a day time club.
Looking back now, although I wouldn't wish have the bad experiences upon anyone (including my worst enemy) it did make me stronger mentally as a person (a human being). I may not have fulfilled my dreams desires or have friends, a partner or even an occupation. But, when I look at it I have something so original and priceless and that is a life, my life. It may not perfect but I am working on each area of my life in a slow, but steady pace which I am comfortable with.
Otis said: I may not have fulfilled my dreams desires or have friends, a partner or even an occupation. But, when I look at it I have something so original and priceless and that is a life, my life.
It's very nice to hear that you are making such a positive impact on your life. Wish you all the best!